The report, Beyond the Diagnosis: The Hidden Costs of Early Breast Cancer, sponsored by Novartis, launched at an event hosted by the Parliamentary Friends of Cancer Care and Cure, Senator Deborah O’Neill and Senator Wendy Askew, highlights that more than 21,000 Australian women are diagnosed with breast cancer each year. Both Nici Andronicus and Justine Turnbull  attended to represent Can Assist.

A new report has exposed the wide-ranging financial, emotional, and social burdens faced by women diagnosed with early breast cancer, especially those living in regional areas including Sunraysia and the Mallee.

It reveals nearly 9 in 10 patients (88%) face significant out-of-pocket expenses, with 1 in 5 delaying or skipping treatment due to cost pressures.

Those costs are compounded as patients miss an average of one-and-a-half years of full-time work, significantly reducing their earning capacity.

The CEO of regional support organisation, Can Assist, Nici Andronicus, says those challenges are proving even greater for women living outside the major cities.

“I’ve been traveling a great deal across regional, remote and rural Australia, and I can tell you that women are choosing, very often, to avoid treatment altogether, mostly due to the cost, but also because of the need to be away from home. They have to travel a very long distance to get to a treatment facility, and that’s just not good enough. The complexity of a cancer treatment is on another level, and that’s why support close to home is so critical.” Nici Andronicus

 

Listen to Nici’sinput below

 

river1467.com.au

March 26, 2026

Mark Middleton, CEO of Icon Group speaks at the workshop.

The Power of Local: How Can Assist is Changing Cancer Care in Country NSW

Last week in Dubbo, Cancer Australia brought together some of the country’s most experienced and committed leaders in cancer care for the Australian Comprehensive Cancer Network workshop at Taronga Western Plains Zoo. The room was filled with remarkable and passionate professionals – nurses, oncologists, researchers and community leaders, alongside national leaders including Professor Dorothy Keefe, CEO of Cancer Australia, and Mark Middleton, CEO of Icon Group. It was a room full of expertise, innovation and intent.

The focus of the workshop was clear: how to strengthen cancer care for people living in regional, rural and remote Australia.

The workforce reality behind the statistics

What emerged quickly was that geography is only part of the story. Beneath the statistics sits a more complex and persistent challenge – the cancer care workforce. Across regional, rural and remote communities, attracting and retaining medical specialists remains incredibly difficult. The result is not just fewer services, but fragmented and inconsistent care. Patients are often required to travel long distances for consultations, surgery and treatment. Care becomes fragmented across multiple locations. And the burden of navigating that system falls heavily on the patient and their family.At the same time, the very people who are most likely to identify when someone needs help, including GPs, nurses, pharmacists, welfare officers, social workers, oncologists, haematologists, radiologists and radiation oncologists, are often themselves part of a stretched and transient workforce. This has a ripple effect that is not always visible, but is deeply felt in our communities.

The hidden impact on referrals

For Can Assist, this challenge plays out in a very practical way. Our volunteers rely on referrals from local health professionals. These relationships are everything. But as many of you have experienced, just as those relationships begin to strengthen, as referral pathways start to become effective, people move on. A GP leaves town. A welfare officer changes roles. A nurse relocates. And suddenly, the connection is gone. The system resets. Meanwhile, patients continue to be diagnosed, often without knowing that support from Can Assist exists at the moments it matters most, particularly at the vital moments for country cancer patients. One of the most confronting insights shared at the workshop was that in some communities, a significant proportion of people who are referred for cancer care are simply not presenting at all. They are missing from the system – not because they don’t need care, but because the barriers of cost, distance and uncertainty are too great. It raises a critical question for all of us at Can Assist: Who are we not reaching?

Care closer to home is more than a convenience

Clinicians and leaders, including Professor Michael Boyer of Chris O’Brien Lifehouse, were aligned on the realities of care closer to home as one of the most effective ways to improve outcomes for country cancer patients. This is not just about convenience. It is about outcomes. When patients can access treatment locally, or closer to home, they are more likely to stay engaged with care. The financial burden is reduced. Families remain connected. The experience becomes more manageable. Across the country, there are examples of this working well. Outreach clinics, telehealth, mobile services and stronger partnerships between metropolitan and regional providers. But these models depend on connection, networks that function well and on communication that breaks down the barriers to funds and potentially lifesaving cancer treatment.

Where Can Assist fits in

Sitting in that room, it was impossible not to recognise how central Can Assist is to this picture. While the medical system works to solve structural challenges, our volunteers are already responding to them every day. Across every community, our Can Assist leadership, members and volunteers are enabling access to treatment, relieving financial pressure when it matters most, and providing reassurance within a system that can feel complex and fragmented. At the same time, they remain a trusted and enduring part of the local community. Over 71 years, Can Assist has become the fabric of local communities. In places where healthcare roles change frequently, Can Assist is often the constant, the trusted presence that can always be relied upon and that consistency matters more than ever.

The opportunity ahead

A clear theme from Dubbo was that better outcomes for country patients will come from a more connected system that identifies people earlier, supports them locally, and moves seamlessly around their treatment needs. This is where Can Assist has a critical role to play. Across our 60 branches, there is an opportunity to strengthen the connections that matter most across health networks, so that every patient who needs support is identified and referred early. In a system where workforce turnover is constant, our strength is consistency. Being visible, embedded and easy to access ensures that no matter who is new to a community, Can Assist remains front of mind. Because earlier connection reduces stress, improves access to treatment, and delivers better outcomes for patients and families.

We Can Lead

There was real momentum in the room in Dubbo, a shared commitment to improving how cancer care is delivered across regional Australia. But the path forward will rely on more than strategy and systems. It will depend on strong local networks, trusted relationships, and organisations that are deeply connected to their communities. That is where Can Assist leads. Every day, volunteers are strengthening the system around the patient, ensuring support is practical, local and immediate. As we look ahead, the opportunity is to build on that foundation: to expand our reach, deepen our partnerships, and continue to ensure that what is raised locally delivers real impact locally. Closing the gap in cancer outcomes is not just a national ambition. It is something we build together, one patient at a time. And it has been happening at Can Assist Branches for more than 71 years.

 

Nici Andronicus

CEO Can Assist

26/03/2026

 

 

 

 

 

 

REPORT TWO: SELECT COMMITTEE ON REMOTE, RURAL AND REGIONAL HEALTH; FINDINGS AND RECOMMENDATIONS.

The Committee continues its investigations with respect to the implementation of all recommendations handed down during the 2021/22 Inquiry into regional, rural and remote health in NSW. 

Read full submission here

 

Findings 21 and 22 outline the funding issues for CT: IPTAAS ineligibility for patients and the ongoing need for not for profits like Can Assist to cover the out-of-pocket costs.

Recommendations 23, 25, 26

Directly recommend that isolated patients be able to claim IPTAAS when choosing community transport. The committee further supports an increase in government grant funding for community transport operators. Further funding reform is recommended through the development of pricing benchmarks.

The State Governments official response is due within 6 months. We are optimistic that the recommendations will be implemented since Premier Minns has repeatedly stated that all recommendations of the original 2021-22 inquiry will be implemented. This subsequent follow up Inquiry is clearly states that more work needs to be done.

Can Assist has impact – giving patients the financial assistance to access treatment at the grassroots level whilst affecting meaningful policy change at the network wide level.

We congratulate the CEO of the peak body of CT who Can Assist has been collaborating with for some time now on these issues. Singing from the same song sheet – it has been a powerful alliance. Should you read chapter 7, you will see that our combined evidence acts as the main source for the committee’s conclusions.

Finally, we congratulate Dr Joe McGirr – for his hard work and dedication to the cause. He has been a key catalyst for significant change – not only in his electorate in Wagga Wagga, where patients can now for the first time access cancer treatment on the same basis as all other public hospitals in our regional centers , but also for the broader population of country NSW as his committee addresses the need for change across our state.

Relating to the delivery of specific health services and specialist care in remote, rural and regional NSW.

Lita, Helen and MP’s

 

Can Assist members from our Orange and Forbes branches provided their feedback to the NSW State Governments Select Committee on Regional, Rural and Remote Health in May.

Out of pocket medication costs, rural healthcare staff shortages, IPTAAS and community transport all topics of discussion.

See here for our thoughts on non-emergency community transport, out of pocket medical costs for rural cancer patients and the state of palliative care.

 

 

From left to right – Majella Gallagher (Can Assist), Dr Peter Baade (Atlas), Senator Wendy Askew, Emma Phillips (Can Assist), Dr Kerrie Mengersen (Atlas).

It was a privilege to provide feedback from our Can Assist Community at the end in January alongside representatives from Australia Cancer Atlas to the Federal Government Senate Committee Inquiry into – Equitable access to diagnosis and treatment for individuals with rare and less common cancers.

See Can Assist’s opening speech here

Can Assist – Opening Speech

To read more about the Inquiry see here

It was a privilege today to provide feedback from our Can Assist community network, alongside Royal Far West Manly Sydney NSW, to the NSW State’s Select Committee on Remote, Rural and Regional Health. They are conducting an inquiry into the implementation of recommendations specifically relating to workforce issues, workplace culture and funding considerations for remote, rural and regional health.

CAN ASSIST Opening Speech : THE IMPLEMENTATION OF PORTFOLIO COMMITTEE NO. 2 recommendations relating to workforce issues, workplace culture and funding considerations for remote, rural and regional health.

See Can Assist’s opening speech here

Can Assist – Opening Speech

To read more about the Inquiry see here

See here for our thoughts on healthcare professional workplace reforms in regional, rural and remote NSW post the 2021 Health Inquiry

Excerpt from Submission below:

Can Assist is the largest cancer support network in rural, regional and remote NSW; active in 56 branches with near 3,000 members. Over the last 30 years we have delivered near $50million in direct patient assistance with one goal in mind – equitable access to cancer treatment and care for non-metro residents. Our branches are operated by local volunteers who live and work in these areas and many have a detailed understanding of their local health landscape.

Read submission in full here