At just 41 years of age Bernie, father of 4 children under 10 and husband of Samantha, was diagnosed with brain cancer.
It all started back in 2017 with bad headaches. After multiple trips to Griffith Base Hospital (70km one way), it was the local doctor who ordered the cat scan that identified an urgent need for further investigation. – Additional scans conducted at Wagga Wagga Base Hospital (170km one way) revealed a brain tumor, so Bernie was rushed to Sydney (630km one way) via air ambulance. Surgery took place the next day.
The rollercoaster continued; 8 weeks of radiotherapy, followed by regular trips back to Sydney; initially every month, then every 2 months, and then tapering off to twice annually. A second tumor was identified at the end of 2021 and a third tumor at the end of 2022. Another surgery, another two sets of radiotherapy – all conducted in Sydney, almost 7 hours away from his hometown.
Bernie receiving treatment at St Vincent’s Hospital in Sydney.
With the exception of the two surgeries Bernie needed to source non-hospital accommodation in Sydney on every trip.
Distance from treatment magnifies the impact of cancer on every level – financially, physically and psychologically.
“Sam (Bernie’s wife) and Izzy (youngest daughter) stayed with me in Sydney over my first surgery…but by the time of my second surgery all the kids were at school and, with my income being so unpredictable Sam needed to go back to work. It was just so daunting; I didn’t know what to ask the doctors and I didn’t remember all the details, especially when it came to the side effects. The costs were piling up – huge out of pockets with radiotherapy, scans costing near $1,000 each time, then travel and accommodation.
“Can Assist have been supporting me from the early days and they took away that initial financial burden …they were the first to help, took away those pain points early, it just meant so much to me. Having the support of my community through Can Assist goes way beyond the dollars …it was like they were in it with me” Bernie Star, Coleambally
Can Assist continues to support Bernie. “Cancer isn’t a one stop fix and nor are we …. we continue to support our clients for as long as they need us” Sue Hardy, President and Patient Liaison Officer, Can Assist Coleambally
Bernie and his family today, still smiling, but it’s been a long road.